June 2026 Hi Reader, Our team has been hearing about an increase in strep-onset cases with various clinical presentations. Sydenham's chorea movement disorders and PANDAS/PANS cases with streptococcal onset are under-treated worldwide due to patient misdiagnosis. This month, we will host a webinar with Madeleine Cunningham, Ph.D. (Immunology and strep expert from the University of Oklahoma Health Science Center), about the mechanisms of strep bacteria and the range of dangerous conditions...

April 2026 Dear Reader, Our nonprofit has been working to support European efforts for greater recognition and treatment availability. Two events are occurring in the next few weeks that have worldwide impact. First, a Global Virutal Streptococcus Research Symposium 2026 The conference focuses on strep science. To represent PANDAS and Rheumatic Fever Madeleine Cunningham, PhD, Oklahoma U, will speak on Autoimmune Mechanisms in Group A Streptococcal Sequelae: Rheumatic Fever, PANDAS and...

Hi Reader, Managing conditions like PANS/PANDAS can feel like trying to solve a puzzle with missing pieces. PANDAS Network is excited to share a new resource from the Brain Inflammation Collaborative (BIC) designed to help you manage daily care while supporting future research. The unhide® Platform is a no-cost, digital tool that helps you manage tracking your child (or your) symptoms, medications and life events while acting as a bridge between your home and the researcher's lab. Our goal is...