Join May 6th Webinar With Expert PANDAS Scientist | DC Advocacy Day | New Support Group | We Need Your Stories
Published about 1 month ago • 2 min read
Dear Reader,
Welcome to the newest edition of the PANDAS Network Newsletter! As spring unfolds, we’re excited to share opportunities to learn, connect, and advocate together. Whether you’re a parent seeking answers or a young person ready to share your journey, there’s something here for you.
Let’s dive in!
Upcoming Webinar: Understanding PANDAS and Sydenham Chorea: How Strep Triggers Different Symptoms: An Immunological Perspective.
Date: Tuesday, May 6, 2025 Time: 2:30 PM EST Featuring: Chandra Menendez, PhD
PANDAS and Sydenham chorea both stem from an autoimmune response to a Group A Strep infection, commonly known as strep throat. In this webinar, Dr. Chandra Menendez, a postdoctoral fellow at the University of Oklahoma Health Sciences Center, will share her latest findings in clear, non-technical language. She’ll reveal why some children with PANDAS/PANS experience severe, uncontrollable whiplash-like symptoms known as Sydenham chorea, while others develop tics or obsessive-compulsive behaviors, offering fresh insights into these complex conditions.
This will be a wonderful opportunity to learn about what might be driving PANDAS/PANS symptoms and also a chance to ask Dr. Menendez your most pressing questions during a Q&A session. So make sure you put this on your calendar and join the webinar early as we are capping attendance to the first 100 people!
The National PANDAS/PANS Youth Alliance is Looking for Youth Stories
Are you a young person who’s faced PANDAS or PANS? The National PANDAS/PANS Youth Alliance is collecting stories from kids, teens, and young adults to build a powerful digital collection of PANDAS/PANS experiences.
Why share? Your voice can help raise awareness, push for better insurance coverage nationwide, and unite youth on their paths to recovery. As a volunteer-led group, we’re committed to supporting the hundreds of thousands of kids affected by these conditions—and it starts with stories like yours!
Connect with us on social media | Instagram: @pandasyouthalliance | TikTok: @pandasyouthalliance
We’d love to feature you on our upcoming website and social channels. Together, we can make a difference!
National PANDAS Youth Alliance
Join Us in Washington, DC for Advocacy Day
Date: April 10-12, 2025 Location: Washington, DC
Mark your calendars for an inspiring event! Advocates and researchers from across the country are gathering in Washington, DC, for the 3rd Annual 36 Hours in DC, hosted by The Alex Manfull Fund (TAMF) and the National Alliance for PANDAS/PANS Action (NAPPA). This partnership is all about accelerating research and treatment breakthroughs for PANS/PANDAS. Whether you’re new to advocacy or a seasoned voice, this is a chance to connect with others who care deeply about these neuroimmune axis disorders.
Researchers and advocates gather in Washington DC to accelerate research and treatment for PANDAS/PANS April 10-12
Support Group: Connect, Share, and Learn
Date: Thursday, April 17, 2025 Time: 2:30 PM EST
Take a moment to connect with others who understand the PANDAS/PANS journey. This virtual support group offers a space to listen, share, and find strength together.
Hello Reader, We’re thrilled to share with you valuable resources and opportunities to connect and learn about PANDAS/PANS in our newest edition of the PANDAS Network newsletter. Inside, you’ll find the recording of a new PANDAS/PANS discovery by a talented young PANDAS/PANS biomedical researcher, a save-the-date for an upcoming PANDAS/PANS presentation by Dr. Craig Shimasaki, and details and Zoom link for our newest support group meeting. We hope this will provide inspiration, knowledge, and...
Dear Reader, Welcome to the newest edition of the PANDAS Network newsletter! We have some brief newsworthy articles we think will resonate with you. But first, we want to remind you that the PANDAS Network is hosting an exciting new webinar you wont want to miss. Let’s dive in! REMINDER - Upcoming Webinar: Understanding PANDAS and Sydenham Chorea: How Strep Triggers Different Symptoms. Date: Tuesday, May 6, 2025Time: 2:30 PM ESTFeaturing: Chandra Menendez, PhD This is a friendly reminder that...
Dear Reader, Welcome to the newest edition of the PANDAS Network Newsletter! As spring unfolds, we’re excited to share opportunities to learn, connect, and advocate together. Whether you’re a parent seeking answers or a young person ready to share your journey, there’s something here for you. Let’s dive in! Upcoming Webinar: Understanding PANDAS and Sydenham Chorea: How Strep Triggers Different Symptoms: An Immunological Perspective. Date: Tuesday, May 6, 2025Time: 2:30 PM ESTFeaturing:...