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Hi Reader, Please join us for a powerful day of meetings with Members of Congress and their staff. Together we'll raise our voices to make change for patients suffering from infection-associated neuropsychiatric conditions.Families affected by PANS/PANDAS, Lyme disease, Bartonella, and related infections know how devastating these illnesses can be. Policy change starts with advocacy. No one should suffer a lifetime of symptom management when healing is possible.By educating lawmakers, we can...
Hi Reader, Managing conditions like PANS/PANDAS can feel like trying to solve a puzzle with missing pieces. PANDAS Network is excited to share a new resource from the Brain Inflammation Collaborative (BIC) designed to help you manage daily care while supporting future research. The unhide® Platform is a no-cost, digital tool that helps you manage tracking your child (or your) symptoms, medications and life events while acting as a bridge between your home and the researcher's lab. Our goal is...
🎄🎁🍾 December 2025 Hi Reader, As the lights of the holiday season begin to glow, we pause to look back on 2025 with hearts full of gratitude for your support. This has been a year of steady, courageous steps forward: new advocacy voices rising in Eastern Europe, youth leaders taking the reins in America, physicians crossing oceans to learn from one another, and every major U.S. nonprofit uniting to protect vital research. What follows is a celebration of this year’s progress, an honest...