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June 2026 Hi Reader, Our team has been hearing about an increase in strep-onset cases with various clinical presentations. Sydenham's chorea movement disorders and PANDAS/PANS cases with streptococcal onset are under-treated worldwide due to patient misdiagnosis. This month, we will host a webinar with Madeleine Cunningham, Ph.D. (Immunology and strep expert from the University of Oklahoma Health Science Center), about the mechanisms of strep bacteria and the range of dangerous conditions...
April 2026 Dear Reader, Our nonprofit has been working to support European efforts for greater recognition and treatment availability. Two events are occurring in the next few weeks that have worldwide impact. First, a Global Virutal Streptococcus Research Symposium 2026 The conference focuses on strep science. To represent PANDAS and Rheumatic Fever Madeleine Cunningham, PhD, Oklahoma U, will speak on Autoimmune Mechanisms in Group A Streptococcal Sequelae: Rheumatic Fever, PANDAS and...
Hi Reader, Please join us for a powerful day of meetings with Members of Congress and their staff. Together we'll raise our voices to make change for patients suffering from infection-associated neuropsychiatric conditions.Families affected by PANS/PANDAS, Lyme disease, Bartonella, and related infections know how devastating these illnesses can be. Policy change starts with advocacy. No one should suffer a lifetime of symptom management when healing is possible.By educating lawmakers, we can...